• We challenge you to I Challenge MS

    30 August 2017

    Here at the MS Society, we host a full suite of fundraising events throughout the year, and across the country. You may have heard of some of them – think MS Walk, MS Bike, and MS Read-a-Thon, to name just a few. We know large scale events aren’t everybody’s cup o’ tea. That’s why we created I Challenge MS.

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  • These kids would make good adults: Philanthropy for kids

    28 July 2017

    Guest post by Lucas Kessler, MSBike participant

    When I first started participating in MSBike two years ago, it was because I liked riding my bike. Sports have always been a pretty big part of my life. I do everything from alpine skiing, to swimming, to my all-time favourite sport: basketball. I was biking with my dad one night when he mentioned MSBike to me. “What’s that?” I asked, followed soon after with, “That’s cool, let’s do it!”

    I was 12 at the time, and didn’t know many people my age who did fundraising events like MSBike. MS has always been a part of my life because both my cousin and my grandma have been diagnosed with it. I’ve seen what living with MS looks like and how it has changed their lives in different ways. (more…)

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  • 20 years strong: a Raap family tradition

    25 July 2017

    Guest post by Wendy Raap, MSBike ambassador

    I’m standing on the edge of the deck with my husband, watching all our friends and family gathered on the lawn. It’s Friday evening in the middle of our MS Bike event in Gimli, and we’re hosting a barbeque that we’ve been holding for the better part of 20 years. All these people – eating, laughing, hanging out together – are here for me. It’s no wonder why this evening always gets me a bit emotional. (more…)

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  • The journey to end MS

    28 June 2017

    Guest post by Ahmed Nassrat, I Challenge MS ambassador

    “Show of hands – who here knows someone affected by MS?”

    All around me, hands shot up. I peered around the room filled with nearly 200 people. I realized that I was the only one whose hand wasn’t waving in the air.

    In the Middle East, where I had moved from just one year earlier, instances of multiple sclerosis are rare. I could clearly see the impact of this disease was so much greater in Canada. Being surrounded by all these people made that obvious. This was my lightbulb moment, and sparked my now decade-long involvement in MS Bike. (more…)

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  • MS Awareness VS stigma: Vanquishing the taboo

    26 June 2017

    Guest post by Chisani Doyle-Wood, MS Bike ambassador & MS awareness champion

    On a summer day last year, I was sitting in my doctor’s office alone. I’d been in this chair a lot lately, and when my doctor came into the room, she announced that she had the results of the most recent MRI I’d undergone. “Have you ever heard of MS?” she asked, looking at me. Immediately my mind was whirling, and my thoughts jumped to one of the few times I had heard the word before – over 15 years ago, when a woman had visited my elementary school and shared her story of how MS had left her wheelchair-bound. I was stunned.

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  • Where there’s a will, there’s a way

    9 June 2017

    Guest post by Patrycia Rzechowka, MS Bike Ambassador

    Its been five years since I was diagnosed with MS, and five years since my first ride. When I get asked why I participate in MS Bike year after year, I have a simple answer – I’m stubborn.

    The weather during my ride last year was rough – I wasn’t only battling my own fatigue, but the elements too. As we came to a halt at a stop sign along the route, I realized I couldn’t feel my legs at all. I thought, ok, maybe this is it. But one of my team members came to my rescue and held my bike upright and clipped my feet back into my pedals. Then he held me steady, ran behind me, and pushed me until I got going again. (more…)

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  • Taking action to improve #LifeWithMS

    By Benjamin Davis

    Canada has the highest rate of multiple sclerosis in the world, which is why Canadians needs us – more than ever before – to step up and take action to improve #LifeWithMS for those affected by the disease. Our own president of Government Relations, Benjamin Davis talks about his meetings with Members of Parliament. 

    As the dust settles on our annual Day on the Hill and carnation pinning ceremony on Parliament Hill, I’ve been reflecting on the importance of the nearly 80 meetings we had with parliamentarians and staff in our nation’s capital.

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  • Reprioritizing my life to save it

    Guest post by Kate Thompson, MS Bike ambassador

    That first year I was diagnosed with MS was hard — hard in so many ways. I had never struggled like I struggled then. Life was chaotic. I had a very supportive husband, whom I almost never saw. Our “quality time” was spent waiting in emergency rooms or for MRI appointments. I had three wonderful children — who were children — with temper tantrums, constant needs, and a poor understanding of what was happening to their mother. I had a career, which I had worked so long and hard to get. I could no longer do many of the things I used to do, like staying up until midnight to finish up work or to make cupcakes for school parties, and then get up at 6 a.m. the next morning to make lunches. Well I could, but my next day would be a mess.

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  • Mother hood and MS: Having multiple children and multiple sclerosis

    Guest post by Lori, MS Walk ambassador shares her experience with motherhood and MS

    We had just moved to Calgary in 2004 – I had always called Winnipeg home, so moving to a new city was stressful. On top of that, I was raising my two-year-old son Ethan. My husband Ryan was working full-time and studying for a professional designation, which kept him very busy, and I worked full time as well. We spent our free time taking care of Ethan, and running him to swimming and skating lessons. We were also in the process of building our first house. They say that’s when MS symptoms come out, when you’re stressed. I lost my vision very quickly over the span of a couple days, first peripheral and then my entire left eye went dark. I immediately sought out medical help and was given steroids to treat the symptoms. At this point, I was told that multiple sclerosis was a possibility, but this symptom alone wasn’t enough for a diagnosis. I had an MRI nine months later and the results were good – no lesions. However, I was told that there was still a 25 percent chance that I would be diagnosed with MS in the next 10 years.

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  • MS research improves peoples’ quality of life

    Guest post by MS Walk ambassador, Darcie opens up about how her neurologist’s foresight saved her quality of life. 

    I like to think that I’m one of the fortunate ones because my neurologist put me on my disease modifying therapy (DMT) right away for my MS without hesitation. Since I’ve been on it, I haven’t had any relapses – it’s been seven years now. His theory was why wait? He’d seen good results in other patients who have multiple sclerosis and took this DMT, and because I hadn’t been on another medication he thought it would be the best option for me – I like to think that my neurologist positively changed my life. I take a once a month transfusion, and although it has its documented side effects, I haven’t run into any issues and it’s drastically changed my quality of life. So now I can still do everything I enjoy doing, but I just have to make sure that I don’t get overtired. I still play volleyball for an hour and a half twice a week, and I’m still able to work full-time, which I’m thankful for.

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