• ‘Tis the season for joining an international movement: Three ways to give

    29 November 2016

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    Today is Giving Tuesday. A movement which began four years ago in the United States in response to the post-American-Thanksgiving consumerist rush of Black Friday and Cyber Monday. Today, Giving Tuesday is an international day of giving, and people around the world are donating to causes close to their hearts. We know that Canada has the highest rate of MS in the world, and we Canadians need to band together and put an end to it!

    Team Fight is stronger than ever before. 2016 has been a year rife with exciting MS research news and other successes, so let’s not quit now!

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  • It’s only getting better: Three ways your donations have helped fund advancements in MS Research

    29 November 2016

    The thing is, Canada has the highest rate of multiple sclerosis in the world, making MS a Canadian problem. It’s why we have the best MS researchers on the job to fix it. We are getting closer through advancements in research, like the three targeted efforts listed below – all zoning in on a cure or helping those living with MS live better until the cure is found. All you need to do is keep up the momentum.

    Today is Giving Tuesday. Today is an international day of giving and people around the world are giving to a cause close to their heart. We hope you’ll make a donation today to end Canada’s disease: multiple sclerosis.

    Canadian BMT Trial
    Drs. Mark Freedman and Harry Atkins from the Ottawa Hospital Research Institute led a trial to determine whether transplanting bone marrow stem cells in people with MS can stop the disease. Outcomes of the trial revealed patients who had highly aggressive forms of MS, and who were not responsive to previous treatments, were relapse free for up to two years following the procedure. Read more about the treatment from Jennifer Molson, one of 24 trial participants: http://bit.ly/2g7EjeJ

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  • Chronic illness in the workplace: One company’s success story

    3 November 2016

    “The measure of a society is found in how they treat their weakest and most helpless citizens.” -Former US President Jimmy Carter

    Living with multiple sclerosis can indeed make us feel helpless sometimes.  It can wear down our physical abilities and our personal agency to shape and take control of our lives.  Sometimes in more progressive manifestations of the disease, a person can quite literally become physically weak and helpless.  MS can deprive us of the peace of mind that predictability and security bring. It can steal the simple joy of play. It can erode the satisfaction that comes with working on something we love – the feeling of a job well done.

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  • Brief attack, lasting impact

    by Robyn Cohen

    It took me almost a full year to recover after my first MS relapse. As this episode unravelled my life, there were a lot of ups and downs, both emotionally and physically. Today, seven years later, I rest as much as I can, take vitamins, eat well, exercise and take my medication weekly. I have not had an attack since 2009. Even so, I want to raise awareness of how an MS relapse can have a lasting impact on your life. Such is living with an unpredictable, episodic illness.

    Multiple sclerosis is tricky and cruel. The fear of your next attack alone can debilitate you. Every morning, I open my eyes, wiggle my toes, and feel grateful that I’m able to conquer my day in four-inch stilettos! Without my doctor’s and family’s support, both financially and emotionally, I’m not sure where I would be today.

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  • Hacking health: What can technology teach us about multiple sclerosis?

    26 October 2016

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    Last fall we attended Canada’s first university-organized medical hackathon – a 36-hour event called Hack4Health at the University of Waterloo. We awarded $15,000 to the winning team to help them develop their idea for a tech-based wellness solution aimed at improving quality of life for people living with MS.

    Team Tera Bio Solutions (TBS) claimed the prize. Its members, hailing from all over the globe and ranging from 19-21 years old, are Denez Zahra Bokhari, Muhammad Tahsin Sharif, Abhinav Grover, and Muhammad Inzamam Tahir.

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  • How to talk about MS after you’ve been diagnosed

    Diane sits quietly in the neurologist’s office collecting her thoughts. She’s just been diagnosed with multiple sclerosis. It didn’t come as a surprise; she recognized many of the warning signs and has known for a few years that something was off. Fatigue and heat sensitivity had tipped her off, but seeing double is what brought her to her doctor to seek answers.

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    And so began an endless series of tests, appointments and scans, which led her to this very moment: feeling oddly relieved to have an answer, even if the answer is MS.  As Diane leaves the hospital, her relief turns to fear: “What do I do now?” She runs through what she has to do next: learn more about this disease and decide whom to tell about her diagnosis. This was not going to be easy.

    Diane’s experience mirrors that of many people’s stories about being diagnosed: nobody wants to feel alone when they get the news. And as well intentioned as people are, sometimes you just need someone who understands what you’re going through.

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  • THREE’S A CROWD: MAINTAINING A RELATIONSHIP WITH MS

    19 October 2016

     

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    Jesse and Pat met at work, the way so many adults do after they graduate. On their first date, Pat introduced Jesse to rock climbing. On their second, they saw Jesse’s favourite band and danced all night. On their third date, they wandered city streets with a thermos full of coffee, laughing about how awkward it would be if their coworkers found out about their relationship.

    Eight months later, Pat and Jesse moved into a beautiful two-bedroom apartment and got a cat.

    That same year, Jesse started to feel burnt out. The couple agreed to be more active and eat more greens. They’d read an article that said green vegetables would boost their energy. Pat felt great, but Jesse started to feel even worse. He could no longer handle even the easiest rock climbing wall because his left arm kept going numb.

    A few months later Jesse was diagnosed with MS.

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  • Tech development for MS symptom management: Denez Bokhari on Team TBS

    13 October 2016

    “Are you sure I can’t offer you tea?”

    Mrs. Bokhari, standing in the lobby of a high rise on the edge of Waterloo, ON, is mother to Denez (21), whom my colleague Stephanie and I do not want to make late for work. We assure her that we are well caffeinated and follow Denez to one of many University of Waterloo labs, where she spends most of her time as a biology student studying medicine.

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  • Why are people having so much trouble getting help?

    Today is trigeminal neuralgia awareness day – take a moment to educate yourself about the rare but exceptionally painful condition at http://tnac.org/tnac/ 

    By Jennifer Sweeney

    Photo by Elaine at Organic Acres and pulled from Jennifer's website: www.jennifersweeney.ca

    Photo by Elaine at Organic Acres and pulled from Jennifer’s website: www.jennifersweeney.ca

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  • Cause a commotion: Four things the Ontario government can do for MS

    6 October 2016

     

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    Imagine for a moment that you could take days off for medical appointments – or because of a short relapse – without worrying about losing your job. That your loved ones could act as caregivers without worrying about what it means for their income. That you had access to government funded physiotherapy programs with trained MS specialists that could drastically improve your ability to walk. And that going out for dinner wasn’t limited to the few restaurants with fully accessible washrooms.

    You shouldn’t have to imagine what life would be like with access to these things – we believe that they should be the norm. Canada has the highest rate of multiple sclerosis in the world. And when it comes to accessibility, we’ll stop at nothing to ensure that people living with MS and other chronic or episodic illnesses and disabilities are properly represented and included in the discussion.

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