• Recognizing caring Canadians: National Caregivers Day

    4 April 2017
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    A CAREGIVER IS A PERSON WHO TAKES ON AN UNPAID CARING ROLE FOR SOMEONE WHO NEEDS HELP BECAUSE OF A PHYSICAL OF COGNITIVE CONDITION, AN INJURY OR A CHRONIC LIFE-LIMITING ILLNESS. 


    Caregivers are the backbone of our health care system and home care programs. They contribute an estimated $25 Billion of unpaid care annually.

    Canada has the highest rate of multiple sclerosis in the world and caregivers make it possible for Canadians living with MS to stay in their homes while receiving the care they need, an important consideration in assessing quality of life, especially given the lack of available age-appropriate long term care.  (more…)

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  • Women in the changing world: International Women’s Day 2017

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    Today is International Women’s Day. So what does that have to do with multiple sclerosis? We’re glad you asked.

    Women in Canada are three times more likely to develop MS than men, but women are often faced with significant barriers – which we’ll be breaking down in this blog post – when it comes to finding reliable information about their health, accessing quality medical services and being prescribed treatment options appropriate to their specific circumstances. Additionally, when taking the Canadian workforce into account, women’s average incomes and earnings are lower making them more susceptible to poverty, which intensifies the barriers and hardship caused by MS[1].

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  • It’s time to tell the world: Kiss Goodbye to MS

    21 January 2017

    Kiss Goodbye to MS is the first and only global fundraising and awareness campaign for multiple sclerosis.

    We talk a lot of talk around here about MS being Canada’s disease. While it’s true that we have the highest rate of MS in the world, and some of the best researchers around, it’s important to remember that we are part of a global community. MS reaches beyond borders, so we’re going to do the same. Now through February 14, we’re calling on all Canadians to join the rest of the world in a show of solidarity, to Kiss Goodbye to MS.

    So how can you help? It’s simple really:

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  • ‘Tis the season for joining an international movement: Three ways to give

    29 November 2016

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    Today is Giving Tuesday. A movement which began four years ago in the United States in response to the post-American-Thanksgiving consumerist rush of Black Friday and Cyber Monday. Today, Giving Tuesday is an international day of giving, and people around the world are donating to causes close to their hearts. We know that Canada has the highest rate of MS in the world, and we Canadians need to band together and put an end to it!

    Team Fight is stronger than ever before. 2016 has been a year rife with exciting MS research news and other successes, so let’s not quit now!

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  • THREE’S A CROWD: MAINTAINING A RELATIONSHIP WITH MS

    19 October 2016

     

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    Jesse and Pat met at work, the way so many adults do after they graduate. On their first date, Pat introduced Jesse to rock climbing. On their second, they saw Jesse’s favourite band and danced all night. On their third date, they wandered city streets with a thermos full of coffee, laughing about how awkward it would be if their coworkers found out about their relationship.

    Eight months later, Pat and Jesse moved into a beautiful two-bedroom apartment and got a cat.

    That same year, Jesse started to feel burnt out. The couple agreed to be more active and eat more greens. They’d read an article that said green vegetables would boost their energy. Pat felt great, but Jesse started to feel even worse. He could no longer handle even the easiest rock climbing wall because his left arm kept going numb.

    A few months later Jesse was diagnosed with MS.

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  • Cause a commotion: Four things the Ontario government can do for MS

    6 October 2016

     

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    Imagine for a moment that you could take days off for medical appointments – or because of a short relapse – without worrying about losing your job. That your loved ones could act as caregivers without worrying about what it means for their income. That you had access to government funded physiotherapy programs with trained MS specialists that could drastically improve your ability to walk. And that going out for dinner wasn’t limited to the few restaurants with fully accessible washrooms.

    You shouldn’t have to imagine what life would be like with access to these things – we believe that they should be the norm. Canada has the highest rate of multiple sclerosis in the world. And when it comes to accessibility, we’ll stop at nothing to ensure that people living with MS and other chronic or episodic illnesses and disabilities are properly represented and included in the discussion.

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  • Nutrition and MS: What we know about what you can do

    30 August 2016

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    People living with multiple sclerosis can benefit from a healthy diet, much like everyone else. While there is no one diet that is guaranteed to improve MS overall, there are some things you can do to help manage the many symptoms of this often complex disease.

    Living with MS sometimes requires a degree of adaptation when it comes to one’s dietary choices, but evidence of the impact of those changes on improving or treating MS are inconclusive. MS presents itself differently in each person, and much like anything else relating to MS, it’s important that you work with your MS healthcare team to determine what works for your personal needs. You may want to include a nutritionist as part of your healthcare team for some advice on how to optimize your diet for those MS symptoms you are dealing with.

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  • When your life is just beginning: Living with MS as a 20-something, part 2

    18 August 2016

    Amanda, Juan and Lizelle have more than a few things in common: they are all unstoppable forces in this world and they’ve all faced the challenges of being a young person affected by MS. They are also all A&W inspirational champions and have worked hard to spread awareness of what it’s like to live with MS across Canada – which Juan will be doing for Burgers to Beat MS on August 25.

    We recently got on the phone with them to talk careers, ambitions, obstacles and successes. This is part 2 of the conversation – read the first part here.

    LM: I’m 27 years old, and I’m not in a wheelchair like my neurologist said I would be. I’m still as active as I was when I was 18 and able to accomplish the tasks I’ve been presented with. I think I’ve been successful in showing people that I’m just the same “normal” person as everyone else. Also, this summer, my boyfriend and I purchased a house! And that’s something I’m super proud of!

    JG/AP: Oh WOW, that’s awesome!!! Congratulations, Lizelle!

    AP: It’ll be 10 years this February since I was diagnosed, so I’m honestly most proud of having survived 10 years with MS! There are lots of things that are different about me since I was 17 but the core of me is still the same. I’m really proud that MS has not broken my spirit. Juan, what about you?

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  • When your life is just beginning: Living with MS as a 20-something, part 1

    17 August 2016

    Amanda, Juan and Lizelle have more than a few things in common: they are all unstoppable forces in this world and they’ve all faced the challenges of being a young person affected by MS. They are also all A&W inspirational champions and have worked hard to spread awareness of what it’s like to live with MS across Canada – which Juan will be doing for Burgers to Beat MS on August 25.

    We recently got on the phone with them to talk careers, ambitions, obstacles and successes. This is part 1 of 2. Read the second half here. 

    Amanda Piron (AP): So, Lizelle and Juan, as little kids, what did you always want to be when you grew up?

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  • Sexual dysfunction: Managing a common symptom

     

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    Intimacy and sexuality are important components of a healthy and contented life. Multiple sclerosis can affect sexual functions both directly and indirectly, but in either case, can impact quality of life. Symptoms can be broken down into the following 3 categories: (more…)

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